Our Son’s Story

Kellan regressed into autism… which means he did meet all milestones as his doctor expected (even more advanced in some areas) and had a few words before one. Then Kellan lost his speech and some milestones he had already achieved. At 18 months he just up and forgot what breastfeeding was and started screaming bloody murder and flopping around like the exorcist one night when I offered. I yelled for my husband crying asking “what’s happening to my baby?!?” He stopped responding to his name, smiled less and less, started stimming, had severe eczema, had terrible reactions, lost eye contact, he went into his own world, and this list goes on.

How did that feel? It felt like we lost our son. It was like grieving who he once was and then having to see him struggle to do things he once did. Though I felt this I also immediately knew I would not EVER put limits on him and we would fight. I was going to get down to the root cause of what was happening medically to his body.

We’ve had tests done and are implementing ways to bring healing in those areas. He’s not able to detox effectively. He has high amounts of heavy metals and environmental toxins in his body so high they are off the charts. They are known to cause cancer, brain damage, or death. He has food allergies and high amounts of bad bacteria in his gut. (There is a gut-brain connection.) Our gut makes up 70% of our immune system and his is over 3 times higher than it should be. He has certain genes known for vitamin and antioxidant deficiencies. These genes have helped us also understand what could be causing issues. He gets so much better then has some flares. We are looking into if PANDAS/PANS is the cause of this.

“Both PANS and PANDAS are associated with infection-triggered autoimmune responses known as “molecular mimicry”. This occurs when our immune system mistakenly attacks normal body tissues because of the structural similarities between a particular molecule on an infectious agent and the molecules in our own body tissues. Rheumatic Fever is one example of molecular mimicry where the immune system is triggered to attack the heart valves in certain individuals after experiencing a strep infection. In PANS and PANDAS, it is believed that something similar occurs where antibodies are triggered to attack a part of the brain called the Basal Ganglia, which is understood to be responsible for movement and behavior.

When some patients are exposed to certain bacteria, viruses or germs, their immune system may go awry, producing autoantibodies that attack not only the invading germs but healthy “receptors” and other targets in the brain. This misguided reaction can result in inflammation in the brain, triggering an abrupt onset of symptoms.”https://www.moleculeralabs.com/pans-and-pandas-overview/

I wish I could share more in-depth of the medical side, but there is so much to his medical story.

He has made amazing progress just from our hard work of healing his body in these areas! He isn’t even the same boy from where we started on this new journey! No eczema and so much more smiles/ happy times. He is breaking limits and changing therapists way of thinking! His pain has purpose! Our pain has purpose! Our boy is amazing…absolutely amazing and he is going to recover and break through every obstacle that comes his way! We will fight every battle with God because he has lead us to our amazing team of experts! We still have a LONG ways to go, but I would love for you to join our journey. The good, the bad, the ugly, and the beauty.

Prayers for healing and comfort to endure what’s ahead is very much welcomed!

This boy is SO loved it’s unreal!

He loves numbers, letters, music, coloring, he is technology savvy, and oh man can I go on and on about how incredible he is. I’m so in love with him and his sister who happens to be the very best sister Kellan could have. Daddy works SO hard so we can provide him the services he needs. We are so thankful for this!

I’m just that definition of Warrior Mom you look up in the autism dictionary. You other autism/special needs moms know what I’m talking about. We have no choice BUT we wouldn’t be anywhere else than front and center of the battle.

The hard days are hard. To see the pain. To see the struggles. The good days… oh the good days let us know we are on the right track to help him in every way!

I love to whisper in his ear “I know you’re still in there. I know you can talk. I know you are so incredibly brilliant! I know your story will help others. I know God is healing you and using you.”

We’ve been doing this journey for a year and not many knew. I wanted us to be knowledgeable about our son’s struggles before we shared with everyone. We are still learning about his body.

If you’ve met one child with autism then you have only met one child with autism. Some of our stories sound the same and others are totally different, but this is our story. I support all individuals stories and we are in this together as a community!

Medical struggles, therapies, we will be sharing it all.

We hope to be a light, but to also be real. Welcome to our world! Welcome into Kellan’s world!